Press Releases
More Than 10,000 Rare Disease Community Advocates Sign Petition Asking Members of Congress to Support Research and Public Health Agencies
In Honor of Rare Disease Week 2025, Petition Amplifies Capitol Hill Ask
In Honor of Rare Disease Week 2025, Petition Amplifies Capitol Hill Ask
Please help local businesses by taking an online survey to help us navigate through these unprecedented times. None of the responses will be shared or used for any other purpose except to better serve our community. The survey is at: www.pulsepoll.com $1,000 is being awarded. Everyone completing the survey will be able to enter a contest to Win as our way of saying, "Thank You" for your time. Thank You!